Ge(h)n mit HSP

I have just joined your HSP site. I was diagnosed in 2003, with 99% probably HSP. I had full tests done at the Royal Free hospital in London. I spent 9days in there, being thoroughly looked at by professional and student Neurologists. I am convinced that I do, indeed have HSP. I do not know the PESKY gene responsible as it has not been identified as yet.....

I am the only member of my family with HSP as far as I know. I find it a quite common thing with other member's of the UK and USA HSP sites. My walking has deteriorated quite a bit in the past year. This may be the result of selling/moving home and all that it entails. We are getting settled now and will resume doing physio everyday, as I find this helps with my balance and helps keep my muscles supple as can be. I own two wheelchairs. A scooter. (Which I prefer). I use crutches/walking sticks and afo's with arch supports to help with the little amount of walking that I do.

Thank you for reading. : I love your emoticons.

Dels.

Nic

hi dels,

welcome to this site! great you made it through the pesky regestration.

anytime you need some help with translation, just let me know.

siggi xx