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Ergänzung von Rudi
ACHTUNG:
Die weiteren Newsletter der australischen HSP-Gruppe sind in übersetzter Form im Themenforum Forschung unter "Neues zum Projekt unserer australischen Freunde" und in "Forschungsprojekt der australischen HSP-Selbsthilfegruppe" erfasst.
 
Hello to all our friends in HSP support groups globally. Here is the Summer Edition email sent out to the Australian HSP community.
        Kind Regards
        Frank
        Frank McKeown
        President
        December 2011
        Season’s Greetings & Best Wishes for Health & Happiness in 2012
        to everyone in the HSP community
        Stem Cell Research Progress
        Breakthrough progress, an outstanding award, additional funding, additional staff, eminent publication and drug screening to start early in 2012… all the news is good news! Read the article http://www.hspersunite.org.au/stem-cell ... -report-2/.
        Gait Study of Children with HSP
        The study is being undertaken as Ph.D. research by physiotherapist Brooke Adair. Volunteers are being called for, so please seriously consider  participation if you have children with HSP… it will be of benefit to all. Read the article http://www.hspersunite.org.au/gait-stud ... -with-hsp/.
        Giving
        Give generously to help reach the $115,000 target for 2011... and encourage your families, friends and loved ones to do the same. The fundraising gauge on the website home page shows over $103,000 — just $12,000 to go to reach the target before the end of the year. Make the Holiday Season more meaningful with your generous gift to fund HSP research.
        Website – Summer 2011 Edition
        The final edition for 2011 is now available on the website, with all the latest news, information and research to read at your leisure over the holidays http://hspersunite.org.au.  There is a report on the Adelaide Workshop in November, all the latest Research Highlights, a jampacked HSPRF News section, and new ideas, information and education in the Living with HSP section.
        It’s your community – it’s your website – embrace it!
        Sincere Best Wishes to All
        Frank
        Frank McKeown
        President
        The HSP Research Foundation Incorporated http://www.hspersunite.org.au/ ABN 46648875912
        is an Income Tax Exempt Charity endorsed by the ATO as a Deductible Gift Recipient organisation.
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